Video: “Facts to Save Your Life” by Gabbi Hicks

 

 

Look at this young woman. She looks pretty fine, doesn’t she?

Now listen to her words. Really listen. (Well, it’s kinda hard not to, she’s so compelling)…

Gabbi Hicks has made this powerful video for the Lyme Disease Challenge, which is spreading the word about Lyme disease by asking people to take a photo or video of themselves “taking a bite out of Lyme” (a lime) and sharing a fact — or ten — to help correct and update all the misinformation floating around out there. And to raise money for research through the International Lyme and Associated Diseases Society(ILADS).

Remember that she’s speaking of a horrible experience shared by as yet untold numbers of people around the globe.

Just around here in Northern Virginia where I live, I know of dozens and dozens of families trying to cope with this epidemic. Kids unable to go to school. Parents unable to go to work because they have to care for their sick child, or because they are too sick themselves.

So if you know someone with Lyme, support them even if you can’t “see” their suffering all the time.

And if you don’t have Lyme yourself, please please please start to learn about prevention.

  • This video and the challenge should go viral to raise awareness! SHARE!
  • To join the Lyme Challenge, got get a lime, then click here to post your photo and one accurate Lyme statement from their list: LymeDiseaseChallenge.org

 

Guest Post: All about able women

LifeLoveLyme:

This insightful post by El Gibbs about disabled women dismissed has elicited some great comments, I’m glad to see.

Originally posted on bluntshovels:

There is something special about being ignored. About being looked past, or over. A pang, that almost tastes like shame, for apologetically asking for a crumb. A seat at the table.

On March 8, there is an event on in Sydney. It’s being widely publicised on radio and tickets are nearly sold out. All About Women sells itself as a space to discuss a range of topics among some impressive women. Lots of people I know are going. I’m not.

In January, I asked the organisers about the accessibility of the venue and the event, if there were any panels discussing disability or if any of the presenters were women with a disability. In response, I was told that the curators would email me, and that they hadn’t asked any of the panellists to disclose whether they had a disability or not.

Hmm, I wonder what this means? Is it…

View original 448 more words

Getting the Attention of Journalists — and with Their Reporting, the World’s

photo(12)

“All the news that’s fit to print”? Then why isn’t there constant press coverage in the NYT and every other news outlet about Lyme and other horrific diseases carried by ticks? Where’s the reporting about the lack of proper diagnosis and treatment and the latest research results?

We’ve asked this question thousands of times. There’s raising awareness. There’s emerging science. There’s human interest.

Just recently I heard yet another story that should be told, about a group of boys in my area who found a way to connect with each other. These young kids have been housebound, some for years. Continue reading

Video: “What Makes Ticks Stick”

Be ready and CLICK HERE: You’ll see a close-up view of how a tick attaches to people. These images may just stick in your mind and spur you to check for ticks daily.

Do ticks live through winter? Research says yes! You can’t protect yourself 100%, but we need to do all we can to lower the odds of getting Lyme – or getting reinfected.

Video: Pathologist Alan MacDonald Addresses Important Lyme Questions

If you’re like me, you want to know the latest scoop on what scientists are learning about Lyme disease. In this May 2013 interview  shared on YouTube by the Arthroplasty Patient Foundation, we hear again from pathologist Alan MacDonald. (This interview is part 2 of a 3-part series, see the first one here). I’ve noted some key points you can jump to if you don’t have time to view the entire interview.

Continue reading

When Lyme Disease Goes to the Heart

Carolyn and her dog x with the friends helping her get the xx treatment.

Carolyn with her pooch Betty and, from left to right, the friends who have banded together to help Carolyn get treatment: Mark Gordon, Jim Pettengill, Teresa Gordon, Bruce Hoppenworth, Marianne Antonelli, and Gary Antonelli. Not pictured: Maggie Gobie.
Photo: Randy Martinek

Lyme affects the heart in more ways than one. Just ask Carolyn Ross, who was loving the outdoor life on a Virginia horse farm back in 2007. Then ominous change came overnight.

She can tell you the day her health crashed: December 27. After a holiday party, flu-like symptoms came on, and a few days later she noticed a rash on her arm.

Continue reading

Blackberry Cobbler

IMG_0947

Photo: LifeLoveLyme

I miss cooking, I really do. I used to prepare meals all the time—for friends, for my kids, just for myself. I’m not an amazing cook, mind you. But I love the process, from chopping and stirring to arranging everything on pretty serving dishes.

When Lyme hit and left me breathless with shock, I couldn’t stand up long enough to stir a sauce, much less haul my pain-riddled self up and down the aisles of the grocery store and stand in the check-out line.

Continue reading

Follow

Get every new post delivered to your Inbox.

Join 105 other followers