Ostriches in Australia – and the US – and Your Country?

Credit: Zappy's flickr stream

Credit: Zappy’s flickr stream

I just saw a Facebook posting by the Lyme Disease Association of Australia that got my Lyme-infected blood boiling:

“Antibiotic treatment for Lyme can often be hard to access in Australia due to our government and health officials opposition and as a result, this can leave patients having to source alternative treatment options…”

At the very least, everyone deserves the chance to see a compassionate, respectful doctor for help with Lyme and other infections from ticks. A doctor who listens and understands and offers medical help — not one who says, “Lyme doesn’t exist here, you don’t have it.” A doctor who offers science-based treatment options.

As we continue to raise our voices, and give financial support to the researchers working on diseases carried by ticks, we’ll crack the ostrich’s egg, the chick will leap out, and finally these public health officials around the world will have to get their heads out of the sand.

Until then, only some of us are lucky enough to have proper care from doctors doing the very best they can—even though they don’t have all the answers they desperately want yet.

We the fortunate have to support the zillions in countries around the world and right here in the US who feel isolated and alone. Thank god for the internet. I would say to those suffering people from some 100 countries who visit this website, take heart, we are with you, wherever you are.

And keep after the ostriches.

 

Visitors to this blog from January to July 2015 live in these countries. Please tell us, what are YOUR government health officials doing about this spreading epidemic? What’s your personal experience with seeking treatment?

United States
Canada
Brazil
United Kingdom
Australia
Italy
France
Netherlands
Belgium
Germany
New Zealand
Finland
Malaysia
Portugal
Romania
India
Sweden
Mexico
Colombia
Philippines
South Africa
Greece
Hungary
Czech Republic
Spain
Poland
Norway
U.S. Virgin Islands
Ecuador
Ireland
Peru
Indonesia
Switzerland
Russia
Ukraine
Singapore
Japan
Saudi Arabia
Pakistan
Denmark
Lebanon
Israel
Uruguay
Chile
Argentina
Venezuela
Macedonia
Egypt
Turkey
Iceland
European Union
Austria
Slovenia
Serbia
Croatia
Hong Kong China
Thailand
Dominican Republic
Latvia
Sri Lanka
Trinidad & Tobago
Jordan
United Arab Emirates
Zimbabwe
Mauritius
South Korea
Nigeria
Estonia
Qatar
Costa Rica
Guatemala
Bahamas
Vietnam
Taiwan
Panama
Bangladesh
Puerto Rico
Mongolia
Kuwait
Algeria

 

Shocking Infographic: Lyme Disease Quick Facts

From Lyme doctor Daniel Cameron & Associates:

 

Video: “Facts to Save Your Life” by Gabbi Hicks

Look at this young woman. She looks pretty fine, doesn’t she?

Now listen to her words. Really listen. (Well, it’s kinda hard not to, she’s so compelling)…

Gabbi Hicks has made this powerful video for the Lyme Disease Challenge, which is spreading the word about Lyme disease by asking people to take a photo or video of themselves “taking a bite out of Lyme” (a lime) and sharing a fact — or ten — to help correct and update all the misinformation floating around out there. And to raise money for research through the International Lyme and Associated Diseases Society(ILADS).

Remember that she’s speaking of a horrible experience shared by as yet untold numbers of people around the globe.

Just around here in Northern Virginia where I live, I know of dozens and dozens of families trying to cope with this epidemic. Kids unable to go to school. Parents unable to go to work because they have to care for their sick child, or because they are too sick themselves.

So if you know someone with Lyme, support them even if you can’t “see” their suffering all the time.

And if you don’t have Lyme yourself, please please please start to learn about prevention.

  • This video and the challenge should go viral to raise awareness! SHARE!
  • To join the Lyme Challenge, grab a lime, then click here to post your photo and one accurate Lyme statement from their list: LymeDiseaseChallenge.org

Guest Post: All about able women

LifeLoveLyme:

This insightful post by El Gibbs about disabled women dismissed has elicited some great comments, I’m glad to see.

Originally posted on bluntshovels:

There is something special about being ignored. About being looked past, or over. A pang, that almost tastes like shame, for apologetically asking for a crumb. A seat at the table.

On March 8, there is an event on in Sydney. It’s being widely publicised on radio and tickets are nearly sold out. All About Women sells itself as a space to discuss a range of topics among some impressive women. Lots of people I know are going. I’m not.

In January, I asked the organisers about the accessibility of the venue and the event, if there were any panels discussing disability or if any of the presenters were women with a disability. In response, I was told that the curators would email me, and that they hadn’t asked any of the panellists to disclose whether they had a disability or not.

Hmm, I wonder what this means? Is it…

View original 448 more words

Hey there, Journalists!

photo(12)

“All the news that’s fit to print”? Then why isn’t there constant press coverage in the NYT and every other news outlet about Lyme and other horrific diseases carried by ticks? Where’s the reporting about the lack of proper diagnosis and treatment and the latest research results?

We’ve asked this question thousands of times. There’s raising awareness. There’s emerging science. There’s human interest.

Just recently I heard yet another story that should be told, about a group of boys in my area who found a way to connect with each other. These young kids have been housebound, some for years. Continue reading

Video: “What Makes Ticks Stick”

Be ready and CLICK HERE: You’ll see a close-up view of how a tick attaches to people. These images may just stick in your mind and spur you to check for ticks daily.

Do ticks live through winter? Research says yes! You can’t protect yourself 100%, but we need to do all we can to lower the odds of getting Lyme – or getting reinfected.

Video: Pathologist Alan MacDonald Addresses Important Lyme Questions

If you’re like me, you want to know the latest scoop on what scientists are learning about Lyme disease. In this May 2013 interview  shared on YouTube by the Arthroplasty Patient Foundation, we hear again from pathologist Alan MacDonald. (This interview is part 2 of a 3-part series, see the first one here). I’ve noted some key points you can jump to if you don’t have time to view the entire interview.

Continue reading

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