All about able women

LifeLoveLyme:

This insightful post about disabled women dismissed has elicited some great comments, I’m glad to see.

Originally posted on bluntshovels:

There is something special about being ignored. About being looked past, or over. A pang, that almost tastes like shame, for apologetically asking for a crumb. A seat at the table.

On March 8, there is an event on in Sydney. It’s being widely publicised on radio and tickets are nearly sold out. All About Women sells itself as a space to discuss a range of topics among some impressive women. Lots of people I know are going. I’m not.

In January, I asked the organisers about the accessibility of the venue and the event, if there were any panels discussing disability or if any of the presenters were women with a disability. In response, I was told that the curators would email me, and that they hadn’t asked any of the panellists to disclose whether they had a disability or not.

Hmm, I wonder what this means? Is it…

View original 448 more words

Getting the Attention of Journalists — and with Their Reporting, the World’s

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“All the news that’s fit to print”? Then why isn’t there constant press coverage in the NYT and every other news outlet about Lyme and other horrific diseases carried by ticks? Where’s the reporting about the lack of proper diagnosis and treatment and the latest research results?

We’ve asked this question thousands of times. There’s raising awareness. There’s emerging science. There’s human interest.

Just recently I heard yet another story that should be told, about a group of boys in my area who found a way to connect with each other. These young kids have been housebound, some for years. Continue reading

Video: “What Makes Ticks Stick”

Be ready and CLICK HERE: You’ll see a close-up view of how a tick attaches to people. These images may just stick in your mind and spur you to check for ticks daily.

Do ticks live through winter? Research says yes! You can’t protect yourself 100%, but we need to do all we can to lower the odds of getting Lyme – or getting reinfected.

Video: Pathologist Alan MacDonald Addresses Important Lyme Questions

If you’re like me, you want to know the latest scoop on what scientists are learning about Lyme disease. In this May 2013 interview  shared on YouTube by the Arthroplasty Patient Foundation, we hear again from pathologist Alan MacDonald. (This interview is part 2 of a 3-part series, see the first one here). I’ve noted some key points you can jump to if you don’t have time to view the entire interview.

Continue reading

When Lyme Disease Goes to the Heart

Carolyn and her dog x with the friends helping her get the xx treatment.

Carolyn with her pooch Betty and, from left to right, the friends who have banded together to help Carolyn get treatment: Mark Gordon, Jim Pettengill, Teresa Gordon, Bruce Hoppenworth, Marianne Antonelli, and Gary Antonelli. Not pictured: Maggie Gobie.
Photo: Randy Martinek

Lyme affects the heart in more ways than one. Just ask Carolyn Ross, who was loving the outdoor life on a Virginia horse farm back in 2007. Then ominous change came overnight.

She can tell you the day her health crashed: December 27. After a holiday party, flu-like symptoms came on, and a few days later she noticed a rash on her arm.

Continue reading

Blackberry Cobbler

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Photo: LifeLoveLyme

I miss cooking, I really do. I used to prepare meals all the time—for friends, for my kids, just for myself. I’m not an amazing cook, mind you. But I love the process, from chopping and stirring to arranging everything on pretty serving dishes.

When Lyme hit and left me breathless with shock, I couldn’t stand up long enough to stir a sauce, much less haul my pain-riddled self up and down the aisles of the grocery store and stand in the check-out line.

Continue reading

Video: Young Freeskier Makes Comeback Following Lyme Treatment

LymeLight – The Story Of Professional Freeskier Angeli VanLaanen Living With Lyme Disease from NEU PRODUCTIONS on Vimeo.

Considering that I can’t even walk my dog around the block right now, this story of an amazing athlete’s return to health was an especially great find.

Freeskier Angeli VanLaanen made this film because she wants others with lyme know that they are not alone—and that recovery is possible.

Click on “play” above to hear her talk about how she was probably infected with lyme disease as a ten-year-old girl by tick bites she got in Wisconsin; Angeli was misdiagnosed during many years of dealing with various symptoms.

Continue reading

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