Category Archives: Video

Video: Musician Daryl Hall Tells His Lyme Disease Story

Seems like years since I’ve heard a Hall and Oates song, but this interview on YouTube sure caught my eye. I’m so glad famous people like Daryl are sharing their personal lyme stories.

Notice how his symptoms gradually built up until the day he crashed and couldn’t ignore them any more. If more people knew about how often lyme—”the great imitator”— is mistaken for other things, they could get on the path to good health sooner.

Also take note: he’s recovering – you will, too.

Video: Making a Difference

On a day like today when pain and other symptoms ratchet up and I am totally lymed-out, I can’t get outside to restore my spirits with a healing dose of Nature.

I’ve found, however,  that online natural history videos can be a decent substitute.  I’ve really been missing my work in ocean conservation, so this one called “Saving Valentina” by the Great Whale Conservancy caught my attention.

I share it here not only because it is one of the most amazing wildlife videos I have ever seen, but also because it says so much about life. Sure, it conveys the stunning beauty of whales.

But this story also celebrates the individual action that can make a big difference: Action by a few people in a tiny boat with one small knife saving the life of one of the largest creatures on Earth.

It makes me think of the lyme literate doctors who act with knowledge, courage, and perseverence to help those whose lives are compromised and endangered by lyme disease at a time when the medical community is divided by controversy over this illness. 

Valentina’s boundless joy in the last three minutes of the video says it all. See for yourself.

Video: Did You Know Ticks Can Transmit Lots of Infections—Like Babesiosis?

I’m very lucky to have wonderful neighbors. One of them, Marilyn, called me the other day to say she’d seen this segment of “Monsters Inside Me” on Discovery’s Animal Planet. It explores the case of a Lyme patient who was not recovering, and her doctor’s discovery that she had babesia caused by the parasite Babesia microti. Marilyn knows I’m being treated for Lyme and wanted to make sure I knew about this co-infection. She got the message: Lyme patients with babesia need treatment for that along with Lyme in order to recover. I’m also lucky to have a Lyme literate doctor who checked me for co-infections at the start because I had soaking night sweats, a key symptom; my treatment is going well. Babesia can also cause the spleen to rupture; read one patient’s story here. The good news is, babesia can be treated. But first it has to be diagnosed. Please, share this video to help get the word out. And if you want lots more information on babesia symptoms and treatment, see this video by Dr. Robert Horowitz of the Hudson Valley Healing Arts Center in New York. 

Video: Negative Thinking Got You Down? “Stop It.”

I tend to call it “going around the mulberry bush.” My therapist calls it circular thinking. But the best analogy, the one that truly tells you how irritating repetitive negative thinking can be, is “like a broken record.”

To those of you too young to have heard a record skip, trust me. The grating sound sets you on edge just like this destructive thought process.

Negative thoughts start zooming around in your brain, one begets another, and pretty soon they are following each other in a maddening loop that keeps playing over and over. The loop invades your days, and it wakes you from slumber at 3 a.m.

“What if I never get better. What if I can’t get my life back. What if I can’t keep my job. What if I lose my house and savings because of out-of-pocket medical costs. What if my spouse/partner/friends abandon me? What if…”

I have two words for you from the great comedian and t.v. therapist Bob Newhart: Stop it. (Sure, this video is tongue-in-cheek and there’s certainly a time for professional therapy. But sometimes you can change the perambulations of your mind all by yourself. And humor definitely helps.)

Cultivate the mental discipline to cut those thoughts off with one swipe of a magic scythe. Because you don’t have room in your life for stress right now.

To recover fully, you need more than medication to kill the bacteria; you need a strong immune system. Do all you can to avoid stress. Start by watching this video. Hopefully you’ll enjoy a laugh.

Then, listen for Bob Newhart’s voice whenever you catch yourself pointlessly repeating worries.  And just stop it.

Video: Tiny Lyme-Carrying Ticks — Know What You’re Looking For

You’ve probably read that ticks carrying lyme disease and other infections can be the size of a poppy seed. Sure, you’ve seen the seeds adorning muffins. But this video PSA with Katie Seeley makes you stop and focus on just how tiny they truly are.

It’s important to know what you are looking for, so that when you check yourself or your kids for ticks, you’re looking as closely as humanly possible. Someone I know pulled a speck from his skin with tweezers thinking it was just a minute scab, until he looked at it up close and saw tiny legs waving at him.

Indeed, these ticks are so small that I missed the one that reinfected me when it first latched onto my thigh. Despite my fanatical body check (I was recovering from a previous infection, so believe me, I was motivated never to be bitten again), the infinitesimal tick eluded me until it had been embedded in my skin for a couple of days and caused some irritation…by which time it had transmitted its dangerous cargo, causing my health to crash again.

Remove an infected tick soon after it bites, and you may well never be infected. Seek proper treatment right away if you are infected, and by most accounts you will feel great soon. Miss the infection for some weeks, months, or years—and you could be in for a world of trouble beyond anything you ever imagined.

So check out this video, and mind Benjamin Franklin’s words: “An ounce of prevention is worth a pound of cure.”
Lymenade, which produced this video with And What Productions, is no more. But the group’s creative work to get the word out about the lyme epidemic lives on. Learn more in the videos following “Poppy Seed,” above.

And to see a New York Times video on how a tick sticks to the skin, click here.