IMG_1075I began this blog when I was spending 24 hours a day in bed because of Lyme disease.

Now I’m keeping the blog going to share what I’ve learned—and what I continue to learn. There’s news and research all the time, even though the media only seems to cover this epidemic occasionally—curious considering that the Centers for Disease Control and Prevention report that 300,000 people are infected in the US every year.

Do the math over a decade; that’s a lot of people. Many doctors and researchers immersed in helping Lyme patients believe that number is very low because of misdiagnoses and under-reporting.

There’s lots of misinformation out there about Lyme, if you haven’t realized that yet.

I’m not a doctor, but I am someone who knows what it’s like to live with this illness. I’ve learned a thing or two. Looking around on my blog, you’ll find:

  • research
  • stories
  • essays
  • videos

I hope they will answer some of your questions, or point you to a helpful source. Or maybe just let you know you are not alone.

One of the biggest lessons I’ve learned is “Take care of more than the medical side of things.” Like any other serious chronic illnesses, Lyme can strip away critical connections to life around you.

Don’t let it happen.

Remember that you are not Lyme disease. You are still you.

If you are critically ill, do your best to hold onto the meaningful people and things that connect you to life and love.

I wish you health.


Please see the “Categories” button to the right to find the topics that might interest you most. Start with prevention! And share your comments, knowledge, humor…

Contact: LifeLoveLyme@gmail.com

6 thoughts on “About…

  1. poeticrachel December 13, 2012 at 3:10 am Reply

    Thank you, you help me understand what my twin sister is going through. I wish I could carry some of her pain for her. Since I can’t. . . it means a lot to me to read your posts and get an idea of what I can do to support her.

    • LifeLoveLyme December 13, 2012 at 3:25 pm Reply

      All you need is that desire to support her, and you’ll find the right sisterly ways to do so. Never underestimate the impact of gestures small and large, including just saying you care and you’re trying to understand. Hope her healing is coming along well.

  2. compostingwords February 24, 2013 at 12:05 am Reply

    So sorry to hear that you are going thru this a second time. That is one of my biggest fears.

    • LifeLoveLyme February 24, 2013 at 10:22 pm Reply

      I see from your blog you are well-informed; just make sure you are super vigilant. Relapse is one word none of us want to hear!

  3. myjourneythrume March 22, 2013 at 11:29 am Reply


    I greatly enjoy reading and following your blog, in fact I am nominating you for the Very Inspired Blogger Award. Check out your nomination at http://myjourneythrume.wordpress.com/2013/03/22/a-very-inspiring-blogger-award


  4. psuwife September 19, 2013 at 10:54 am Reply

    I’m new to the Lyme community, and your newest follower. And fellow Virginian. You, and all the other Lymies are in my thoughts and give me strength every day!

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