Tag Archives: lyme

VIDEO: “Unrest”

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I would have missed this award-winning documentary on PBS by a young woman named Jennifer Brea had my brother not alerted to me to it after he heard a segment on NPR. (See below for streaming links).

Here are a few words that were in my mind as I watched: Brilliant. Inspiring. Courageous. Talented. Heart-rending. Timely.

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10 Million Recent Reasons to be Hopeful about Lyme Disease




I have been wondering lately if it’s just my imagination or if Lyme research and awareness are finally getting traction. Because funding has been pretty dismal historically. But the situation is improving bit by tiny bit.

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Video: Shocking Portrayal of Youth Lost to Lyme



When I discovered this on YouTube, I sobbed as a happy young boy’s health disintegrated before my eyes because of Lyme and co-infections—and no appropriate treatment.  I weep when I see it today.

Shame on the Canadian health system. He had to travel to the US for treatment. Not that it was easy to find a doctor here, either.

How many more victims of the Lyme controversy could make a video like this? How many more have lost their childhoods?

If he had been diagnosed and treated early, this video would never have been made.

Jean-Luc, I think of you often. You are my hero. Your courage has sustained me many a day. I haven’t found the rest of your story online, but I hope the treatment you finally got has brought you to remission.

Highest Confirmed Lyme Cases: Boys Ages 5-9

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This graph is frightening: Our boys and girls are most at risk. I’m guessing that’s because they spend so much time exposed to ticks: playing outside, playing sports on grassy fields, and rolling around with beloved pets that may be carrying infected hitch-hikers.

Bear in mind these are the reported cases at the moment; many experts believe overall numbers are much higher due to under-reporting and testing that is 50% inaccurate. I bet there’s an update soon from the CDC’s current number of 300,000 reported cases year.

We need prevention, prevention, prevention—and we need solid diagnostic testing and treatment. What can we do? Raise awareness by writing local and federal government reps and newspapers. Take what we learn to our primary care docs. Advocate for research funding.

Kids should not be disabled, losing out on school, friends, family time, music lessons, sports, first dates, homecoming and more because of a preventable illness.

Beware Infection and Re-infection with Lyme

My friend Mickey gave me this magnifying glass cleverly disguised as a necklace. Note the thin tweezers for grasping the tick close to the skin, and the sesame seed next to the nymphal tick.               LifeLoveLyme

My friend Mickey gave me this magnifying glass cleverly disguised as a necklace. Note the thin tweezers for grasping the tick close to the skin, and the sesame seed next to the largish-sized nymphal tick.



Last week, I had just pulled out of my brother’s driveway in the gorgeous countryside on the outskirts of Middleburg, Virginia, when I felt an itch on my ankle. I looked down and saw a teensy tick clinging on by its mouthparts. Wrenching the steering wheel, I pulled over in a blind panic. Using my fingernails as tweezers, I grabbed it as close to the skin as I could and got it off.

Chanting “Be calm, be calm,” I got out of my car and scanned the parts of my body I could see. There on the back of one leg was a larger tick. I struggled with that one but got it off, too.

Making a U-turn like I was in a movie getaway scene, I tore up John’s driveway, jumped from the car and ran into his house. I shouted out what I’d found as I headed for the bathroom, stripping off my clothes as I went.   Continue reading

Ticks on the Move

Screen Shot 2016-05-01 at 7.42.04 PMThis graph from the US Centers for Disease Control and Prevention gives a clear picture of what’s ahead for summer: plenty of potential for tick bites transmitting Lyme (and other nasties).

You cannot be too careful; there’s no such thing. A friend told me the other day that his mom’s hairdresser found a tick in her hair. Thankfully it had not bitten her yet.

She has an indoor cat and doesn’t generally spend much time off sidewalks, so you can see that this health threat can be tough to avoid.

I’ve heard that 50% of ticks around here are infected. The odds are not good. We’ve got to be vigilant all year long, even in winter, but never more than in May thru August.

What Does Chronic Fatigue Mean, Really?




Because I’m not merely “tired” when Lyme  gets me in it’s grip, I’m far beyond that. Tired is what happens to well people who overdo. It’s what happens to heroines in Victorian novels who faint on chaises.

Isn’t there a better pronouncement for what happens to people with chronic illness—sometimes even when we do nothing at all?

In my opinion, “chronic fatigue” is so overused it has no meaning.  Continue reading