When I discovered this on YouTube, I sobbed as a happy young boy’s health disintegrated before my eyes because of Lyme and co-infections—and no appropriate treatment. I weep when I see it today.
Shame on the Canadian health system. He had to travel to the US for treatment. Not that it was easy to find a doctor here, either.
How many more victims of the Lyme controversy could make a video like this? How many more have lost their childhoods?
If he had been diagnosed and treated early, this video would never have been made.
Jean-Luc, I think of you often. You are my hero. Your courage has sustained me many a day. I haven’t found the rest of your story online, but I hope the treatment you finally got has brought you to remission.
My friend Mickey gave me this magnifying glass cleverly disguised as a necklace. Note the thin tweezers for grasping the tick close to the skin, and the sesame seed next to the largish-sized nymphal tick.
Last week, I had just pulled out of my brother’s driveway in the gorgeous countryside on the outskirts of Middleburg, Virginia, when I felt an itch on my ankle. I looked down and saw a teensy tick clinging on by its mouthparts. Wrenching the steering wheel, I pulled over in a blind panic. Using my fingernails as tweezers, I grabbed it as close to the skin as I could and got it off.
Chanting “Be calm, be calm,” I got out of my car and scanned the parts of my body I could see. There on the back of one leg was a larger tick. I struggled with that one but got it off, too.
Making a U-turn like I was in a movie getaway scene, I tore up John’s driveway, jumped from the car and ran into his house. I shouted out what I’d found as I headed for the bathroom, stripping off my clothes as I went. Continue reading
Because I’m not merely “tired” when Lyme gets me in it’s grip, I’m far beyond that. Tired is what happens to well people who overdo. It’s what happens to heroines in Victorian novels who faint on chaises.
Isn’t there a better pronouncement for what happens to people with chronic illness—sometimes even when we do nothing at all?
In my opinion, “chronic fatigue” is so overused it has no meaning. Continue reading
If you’re like me, you want to know the latest scoop on what scientists are learning about Lyme disease. In this May 2013 interview we hear again from pathologist Alan MacDonald. (This interview is part 2 of a 3-part series, see the first one here). I’ve noted some key points you can jump to if you don’t have time to view the entire interview.