Tag Archives: lyme disease

Video: Shocking Portrayal of Youth Lost to Lyme

 

 

When I discovered this on YouTube, I sobbed as a happy young boy’s health disintegrated before my eyes because of Lyme and co-infections—and no appropriate treatment.  I weep when I see it today.

Shame on the Canadian health system.

How many more victims of the Lyme controversy could make a video like this?

Jean-Luc, I can’t find you, but I pray you have found the right help as I have, and remission.

I think of you often. You are my hero. Your courage has sustained me many a day.

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Video: “Lyme Is Hell”

This powerful public service ad comes from the Netherlands. This English version was just released for World Lyme Day 2016. (View the Dutch version here.)It’s going viral.

The last bit may surprise you. Or…may not, if you are living with this illness.

May is Lyme Awareness Month. Please promote understanding of Lyme Disease: Please share.

And protect yourself from this hell. Read these top ten prevention tips from ILADS (International Lyme and Associated Diseases Society).

Guest Post: What to Do if You Find a Tick

Ticks. Calvert County, Maryland. LifeLoveLyme

Ticks. Calvert County, Maryland.
LifeLoveLyme

 

 

 

by Kathy Meyer

IMG_2437

Virginia Governor’s Task Force on Lyme Disease 2010-13 and

Co-leader, Parents of Children with Lyme Support Network, DC Metro Area

 

“…The physician cannot rely on a laboratory test or clinical finding at the time of the bite to definitely rule in or rule out Lyme Disease infection, so must use clinical judgment as to whether to use antibiotic prophylaxis. Testing the tick itself for the presence of the spirochete, even with PCR technology, is helpful but not 100% reliable.

An established infection by B. burgdorferi [the bacteria that causes Lyme] can have serious, long-standing, or permanent, and painful medical consequences, and be expensive to treat. Since the likelihood of harm arising from prophylactically applied anti-spirochetal antibiotics [taking antibiotics to kill potential infection] is low, and since treatment is inexpensive and painless, it follows that the risk benefit ratio favors tick bite prophylaxis.”

-Dr. Joseph Burrascano, the longest-treating physician for Lyme in the U.S.

 

As the weather warms, there is justifiable panic in the question, “I just found a TICK on me, so what do I DO?!”  Continue reading

Portrait of a Love Triangle

Made by Courtney, age 2.

Made by Courtney, age 2.

 

 

 

Recovering from the heartbreak of divorce, I eventually signed up for an online dating service. After years of sad, stressful times, I just wanted to relax and have fun, get out in the world, talk to some interesting new people.

He was my third date. Smart, funny, sweet, and kind. With blue eyes and a cleft chin, he was handsome in an understated, classic way. Best of all, there was nothing he wouldn’t say yes to, from new foods to travel. He taught me about sailing; I shared my love of cycling. We took turns planning dates that involved something new for the other person. Over a couple of years we grew ever closer, often marveling at just how close we felt.

Half French, he took me to Paris to experience the culture he loves so much. His goal was to show me every single thing he loves in La Ville Lumière. Unfortunately, I was so tired that I didn’t feel like myself. My customary verve and joi de vivre were flagging along with my body. Continue reading

20-Something Asks, Will a U.S. President Stand with Us?

 

Check out this email I just got:

Hello,

My name is Daniel. I am 21 years old and I have chronic Lyme with multiple co-infections.

I am writing to you today asking for your support. As you may know this is election year for us here in the States. Many issues are discussed by the candidates but one issue is missing from their platforms. The controversy of chronic Lyme. The fact that hundreds of thousands are sick and go without healthcare coverage is sickening and needs to change. That is why I put this petition together. I am hoping that this gains enough signatures to bring awareness to this topic. I mean how awesome would it be for a candidate to finally stand with us and have Lyme be apart of their platform? This is a big opportunity. So, the time has come to make a decision. Are we in this thing alone or are we in it together?

Sign here:
http://pac.petitions.moveon.org/sign/bernie-stand-with-the?source=s.icn.fb&fb_test=49&r_by=15105909

In health,
Daniel Alegria

The list of signatures is growing fast. See what one person can get started when they have an idea and put it in motion? Love it!

Bernie’s not your candidate? You know what I am going to say next: What about creating a petition to reach your choice for President?

10 Things I Wish I’d Known About Lyme Disease

IV treatment. Pills. More pills. I can't believe I made it through all that. When it could have been avoided...

That’s the little portable pump for my IV drugs. Then there were the pills. More pills. Harsh meds that made me sicker so I could get better. I can’t believe I made it through all that. When it could have been avoided…

 

 

It’s 2016, and I’m finally climbing out of the Lyme hell I fell into blindly four-and-a-half years ago. If only I’d known more, sooner.

Maybe I can help someone, somewhere, by offering a few things I was shocked to learn. Frankly, it is damned hard to pick just 10 things. But here goes:  Continue reading

Cutting-edge Test Sets a Trap for Lyme

Click here to download and play a cool Powerpoint animation of the nano trap at work: Nanotrap animation. Courtesy Dr. Lance Liotta, George Mason University.

Don’t be put off by the science lingo—click on the image to download and play a Powerpoint of the nanotrap at work. Cool, right?
Courtesy of Dr. Lance Liotta, George Mason University.

 

Several years ago after gardening in my suburban backyard, I found a deer tick attached to my hip. Then came a rash. And then I started hurting all over like I was getting the flu.

I wasn’t surprised when my nurse practitioner examined me, diagnosed Lyme, and prescribed antibiotics. I should have been lucky. I had the bite with the beast still attached, in the middle of the classic target rash. I felt like I was dying of flu-like aches and pains.

But as it turned out, I wasn’t lucky after all.  Continue reading