I have been wondering lately if it’s just my imagination or if Lyme research and awareness are finally getting traction. Because funding has been pretty dismal historically. But the situation is improving bit by tiny bit.
When I discovered this on YouTube, I sobbed as a happy young boy’s health disintegrated before my eyes because of Lyme and co-infections—and no appropriate treatment. I weep when I see it today.
Shame on the Canadian health system. He had to travel to the US for treatment. Not that it was easy to find a doctor here, either.
How many more victims of the Lyme controversy could make a video like this? How many more have lost their childhoods?
If he had been diagnosed and treated early, this video would never have been made.
Jean-Luc, I think of you often. You are my hero. Your courage has sustained me many a day. I haven’t found the rest of your story online, but I hope the treatment you finally got has brought you to remission.
Last week, I had just pulled out of my brother’s driveway in the gorgeous countryside on the outskirts of Middleburg, Virginia, when I felt an itch on my ankle. I looked down and saw a teensy tick clinging on by its mouthparts. Wrenching the steering wheel, I pulled over in a blind panic. Using my fingernails as tweezers, I grabbed it as close to the skin as I could and got it off.
Chanting “Be calm, be calm,” I got out of my car and scanned the parts of my body I could see. There on the back of one leg was a larger tick. I struggled with that one but got it off, too.
Making a U-turn like I was in a movie getaway scene, I tore up John’s driveway, jumped from the car and ran into his house. I shouted out what I’d found as I headed for the bathroom, stripping off my clothes as I went. Continue reading
by Kathy Meyer
Virginia Governor’s Task Force on Lyme Disease 2010-13 and
Co-leader, Parents of Children with Lyme Support Network, DC Metro Area
“…The physician cannot rely on a laboratory test or clinical finding at the time of the bite to definitely rule in or rule out Lyme Disease infection, so must use clinical judgment as to whether to use antibiotic prophylaxis. Testing the tick itself for the presence of the spirochete, even with PCR technology, is helpful but not 100% reliable.
An established infection by B. burgdorferi [the bacteria that causes Lyme] can have serious, long-standing, or permanent, and painful medical consequences, and be expensive to treat. Since the likelihood of harm arising from prophylactically applied anti-spirochetal antibiotics [taking antibiotics to kill potential infection] is low, and since treatment is inexpensive and painless, it follows that the risk benefit ratio favors tick bite prophylaxis.”
-Dr. Joseph Burrascano, the longest-treating physician for Lyme in the U.S.
As the weather warms, there is justifiable panic in the question, “I just found a TICK on me, so what do I DO?!” Continue reading
I’m pretty tired of that perky Jamie Lee Curtis and her “Activia” ads on television. Yeah, I’ll admit it, maybe I’m just jealous that she looks so damned good at her age, while I feel my own looks sliding into oblivion as the years slide by.
But I’ll admit she delivers an important message in those yogurt ads—good bacteria promote digestive health. And I’ve learned they do much more.
Specter reports that “…the destruction of bacteria may contribute to Crohn’s disease, obesity, asthma, and many other chronic illnesses.”
As if I didn’t have enough to worry about with threatening bacteria like Borrelia burgdorferi and Babesia microti roving my body and making me sick, I’m quite concerned that antibiotic treatment is killing too many good guys among the tens of thousands of bacteria species in my body. Continue reading
I’m very lucky to have wonderful neighbors. One of them, Marilyn, called me the other day to say she’d seen this segment of “Monsters Inside Me” on Discovery’s Animal Planet. It explores the case of a Lyme patient who was not recovering, and her doctor’s discovery that she had babesia caused by the parasite Babesia microti. Marilyn knows I’m being treated for Lyme and wanted to make sure I knew about this co-infection. She got the message: Lyme patients with babesia need treatment for that along with Lyme in order to recover. I’m also lucky to have a Lyme literate doctor who checked me for co-infections at the start because I had soaking night sweats, a key symptom; my treatment is going well. Babesia can also cause the spleen to rupture; read one patient’s story here. The good news is, babesia can be treated. But first it has to be diagnosed. Please, share this video to help get the word out. And if you want lots more information on babesia symptoms and treatment, see this video by Dr. Robert Horowitz of the Hudson Valley Healing Arts Center in New York.