Staying on boardwalk trails at Great Falls National Park in Virginia.
I’ve been thinking about the day I went hiking in a gorgeous old chestnut forest in Southern Maryland that is protected by a local land trust. Volunteers keep the trails beautifully manicured, with small limbs trimmed back and mulch on the paths.
This was my first long walk in years; treatment had finally gotten me to a place where I figured I could handle it without crashing.
I felt I was relatively safe from ticks there, keeping out of underbrush, not brushing up agains branches. My boots and clothes were treated with bug-killing permethrin. I really looked forward to rambling about for an hour or so of fresh air, soaring trees, and bird song. Judging from the way he pranced along, my dog Mo was pretty excited, too.
When I got home I did all the necessary things: Stripped, threw everything in the dryer on hot for 20 minutes to kill any ticks, took a shower, washed and dried my hair, checked my body.
It wasn’t until the next morning that I found a tick sucking on my leg. Who knows where it came from. Perhaps from Mo; my vet tells me no tick-killing products for pets are 100% effective.
It’s a myth that it takes at least 48 hours to become infected—more like a matter of hours. So I knew enough to call my Lyme doctor, who immediately increased my antibiotics (I was recovering from a tick bite more than two years before and still on meds). But it was already too late. Continue reading
And when are these attacks going to stop? I know of a local doctor in court right now fighting to protect herself—and going bankrupt in the process.
We must all speak up against this unspeakable problem in so many countries!
See One Step Closer for Physicians in VA.
Made by Courtney, age 2.
I lost a relationship to Lyme. As I’ve learned since, Lyme has ruined many relationships and marriages.
The year we met was wonderful. He was smart, funny, sweet, and kind. Best of all, he said “yes” to everything, from new foods to foreign films to travel. He taught me about sailing; I shared my love of cycling. Over a couple of years we grew close.
Then came the beginning of the end of us. When he won tickets to Paris and we arrived full of plans to explore La Ville Lumière, suddenly I was so tired that I didn’t couldn’t keep up. My customary joi de vivre was flagging along with my body. We thought it was jet lag or flu. Continue reading
Check out this email I just got:
My name is Daniel. I am 21 years old and I have chronic Lyme with multiple co-infections.
I am writing to you today asking for your support. As you may know this is election year for us here in the States. Many issues are discussed by the candidates but one issue is missing from their platforms. The controversy of chronic Lyme. The fact that hundreds of thousands are sick and go without healthcare coverage is sickening and needs to change. That is why I put this petition together. I am hoping that this gains enough signatures to bring awareness to this topic. I mean how awesome would it be for a candidate to finally stand with us and have Lyme be apart of their platform? This is a big opportunity. So, the time has come to make a decision. Are we in this thing alone or are we in it together?
The list of signatures is growing fast. See what one person can get started when they have an idea and put it in motion? Love it!
Bernie’s not your candidate? You know what I am going to say next: What about creating a petition to reach your choice for President?
That’s the little portable pump for my IV drugs. Then there were the pills. More pills. Harsh meds that made me sicker so I could get better. I can’t believe I made it through all that. When it could have been avoided…
It’s 2016, and I’m finally climbing out of the Lyme hell I fell into blindly four-and-a-half years ago. If only I’d known more, sooner.
Maybe I can help someone, somewhere, by offering a few things I was shocked to learn. Frankly, it is damned hard to pick just 10 things. But here goes: Continue reading
Don’t be put off by the science lingo—click on the image to download and play a Powerpoint of the nanotrap at work. Cool, right?
Courtesy of Dr. Lance Liotta, George Mason University.
Several years ago after gardening in my suburban backyard, I found a deer tick attached to my hip. Then came a rash. And then I started hurting all over like I was getting the flu.
I wasn’t surprised when my nurse practitioner examined me, diagnosed Lyme, and prescribed antibiotics. I should have been lucky. I had the bite with the beast still attached, in the middle of the classic target rash. I felt like I was dying of flu-like aches and pains.
But as it turned out, I wasn’t lucky after all. Continue reading
I’m always a little stunned when I track this blog and am reminded that people from all over the world visit. So many of us are on the lookout for information.
Today I’m thinking about Canadians because lots of my traffic at the moment is coming from my neighbors to the north, who’ve been checking out my post from several years ago on how Lyme was affecting my brain at the time. Looks like some of you are sharing the link on Facebook. Thank you!
Like others around the globe, many Canadians are having a tough time getting good treatment. Health officials just don’t get it (sound familiar?).
The nonprofit Canadian Lyme Disease Foundation says: Continue reading
Credit: Zappy’s flickr stream
I just saw a Facebook posting by the Lyme Disease Association of Australia that got my Lyme-infected blood boiling:
“Antibiotic treatment for Lyme can often be hard to access in Australia due to our government and health officials opposition and as a result, this can leave patients having to source alternative treatment options…”
At the very least, everyone deserves the chance to see a compassionate, respectful doctor for help with Lyme and other infections from ticks. A doctor who listens and understands and offers medical help — not one who says, “Lyme doesn’t exist here, you don’t have it.” A doctor who offers science-based treatment options. Continue reading
“All the news that’s fit to print”? Then why isn’t there constant press coverage in the NYT and every other news outlet about Lyme and other horrific diseases carried by ticks? Where’s the reporting about the lack of proper diagnosis and treatment and the latest research results?
We’ve asked this question thousands of times. We have plenty of topics: Raising awareness. Emerging science. Suffering patients. Impacts on families, businesses, the economy.
Just recently I heard yet another story that should be told, about a group of boys in my area who found a way to connect with each other. These young kids have been housebound, some for years. Continue reading