Infected

C at Great Falls

Staying on boardwalk trails at Great Falls National Park in Virginia.

 

I’ve been thinking about the day I went hiking in a gorgeous old chestnut forest in Southern Maryland that is protected by a local land trust. Volunteers keep the trails beautifully manicured, with small limbs trimmed back and mulch on the paths.

This was my first long walk in years; treatment had finally gotten me to a  place where I figured I could handle it without crashing.

I felt I was relatively safe from ticks there, keeping out of underbrush, not brushing up agains branches. My boots and clothes were treated with bug-killing permethrin. I really looked forward to rambling about for an hour or so of fresh air, soaring trees, and bird song. Judging from the way he pranced along, my dog Mo was pretty excited, too.

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When I got home I did all the necessary things: Stripped, threw everything in the dryer on hot for 20  minutes to kill any ticks, took a shower, washed and dried my hair, checked my body.

It wasn’t until the next morning that I found a tick sucking on my leg. Who knows where it came from. Perhaps from Mo; my vet tells me no tick-killing products for pets are 100% effective.

It’s a myth that it takes at least 48 hours to become infected—more like a matter of hours. So I knew enough to call my Lyme doctor, who immediately increased my antibiotics (I was recovering from a tick bite more than two years before and still on meds). But it was already too late.  Continue reading

Video: Bullying of Australian Docs Creating Medical Refugees

 

And when are these attacks going to stop? I know of a local doctor in court right now fighting to protect herself—and going bankrupt in the process.

We must all speak up against this unspeakable problem in so many countries!

 

See One Step Closer for Physicians in VA.

 

 

Guest Post: Humorous Relationship-Related Songs for Lyme Warriors

Brilliant! I’m gonna love this newly discovered blog!

A Psycho Babbles

It’s the end of January and February is almost upon us. That means the stores have been filled with Valentines crap since December 26th. No matter how hard you try to avoid it, those chocolates and frilly cards are EVERYWHERE.

(Funny story…when I worked at a supermarket in the 90’s, there were several people, not me of course, who would smash all the heart shaped lollipops then eat the smashed pieces. There’s a metaphor in there somewhere.)

On February 14th, I always find myself scrolling through my Facebook feed, rolling my eyes at all the happy, sappy, lovey dovey posts and being forced to respond by posting all the “love sucks” songs I can find.

(Which, trust me isn’t hard. I estimate about 85%…no 90% of my music collection consists of “love sucks” songs. I don’t know how it happened. One day I took inventory and realized I owned an…

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Portrait of a Love Triangle

Made by Courtney, age 2.

Made by Courtney, age 2.

 

 

 

I lost a relationship to Lyme. As I’ve learned since, Lyme has ruined many relationships and marriages.

The year we met was wonderful. He was smart, funny, sweet, and kind. Best of all, he said “yes” to everything, from new foods to foreign films to travel. He taught me about sailing; I shared my love of cycling. Over a couple of years we grew close.

Then came the beginning of the end of us. When he won tickets to Paris and we arrived full of plans to explore La Ville Lumière, suddenly I was so tired that I didn’t couldn’t keep up. My customary joi de vivre was flagging along with my body. We thought it was jet lag or flu.  Continue reading

One Step Closer to Protection for Physicians in VA

 

 

Here’s the news release from National Capital Lyme Association:

FOR IMMEDIATE RELEASE

Contact: Monte L. Skall
Telephone: 703-821-8833
Email: NatCapLyme@natcaplyme.org
Website: http://www.natcaplyme.org

Virginia Senate Passes Landmark Lyme Disease Bill

NatCapLyme Urges the House of Delegates to Follow Suit

(McLean, VA) – February 11, 2016 – The National Capital Lyme Disease Association (NatCapLyme) today announced that the Virginia Senate passed landmark legislation relating to a patient’s right to treatment under guidelines listed in the National Guidelines Clearinghouse (the “NGC”).

Lyme can be tremendously debilitating, leading to loss of livelihood and even normal daily functioning. Lyme patients are desperate for treatment options. Increasingly, however, Virginia doctors are refusing new patients who present with the symptoms of Lyme or other tick-borne diseases. Where it appears that a patient may require extended antibiotic treatment beyond the standard 28 days, many Virginia doctors believe that reporting and treating these cases can lead to sanctions from the Virginia Board of Medicine.  Continue reading

20-Something Asks: “Will a U.S. President Stand with Us?”

 

Check out this email I just got:

Hello,

My name is Daniel. I am 21 years old and I have chronic Lyme with multiple co-infections.

I am writing to you today asking for your support. As you may know this is election year for us here in the States. Many issues are discussed by the candidates but one issue is missing from their platforms. The controversy of chronic Lyme. The fact that hundreds of thousands are sick and go without healthcare coverage is sickening and needs to change. That is why I put this petition together. I am hoping that this gains enough signatures to bring awareness to this topic. I mean how awesome would it be for a candidate to finally stand with us and have Lyme be apart of their platform? This is a big opportunity. So, the time has come to make a decision. Are we in this thing alone or are we in it together?

Sign here:
http://pac.petitions.moveon.org/sign/bernie-stand-with-the?source=s.icn.fb&fb_test=49&r_by=15105909

In health,
Daniel Alegria

The list of signatures is growing fast. See what one person can get started when they have an idea and put it in motion? Love it!

Bernie’s not your candidate? You know what I am going to say next: What about creating a petition to reach your choice for President?

Protection for Docs Treating Lyme

Virginia State Flag

Virginia State Flag

 

Tomorrow, the state Senate in Virginia will vote on the language below proposed in a new bill:

1. That the Code of Virginia is amended by adding a section numbered 54.1-2963.3 as follows:

§54.1-2963.3. Treatment of Lyme disease.

No health care provider who provides treatment for Lyme disease or other tick-borne disease in accordance with a clinical practice guideline maintained by the National Guideline Clearinghouse after obtaining informed consent, which shall include an explanation of the risks and benefits of such treatment, from the patient to whom treatment is provided shall be the subject of any disciplinary proceeding by the Board of Medicine for following such clinical practice guideline, absent gross negligence or willful misconduct.

 

First of all, let me say how shameful it is that we even need to ask for such a law. Really? When we are in the midst of a growing global health crisis?  Continue reading