When I discovered this on YouTube, I sobbed as a happy young boy’s health disintegrated before my eyes because of Lyme and co-infections—and no appropriate treatment. I weep when I see it today.
Shame on the Canadian health system. He had to travel to the US for treatment. Not that it was easy to find a doctor here, either.
How many more victims of the Lyme controversy could make a video like this? How many more have lost their childhoods?
If he had been diagnosed and treated early, this video would never have been made.
Jean-Luc, I think of you often. You are my hero. Your courage has sustained me many a day. I haven’t found the rest of your story online, but I hope the treatment you finally got has brought you to remission.
May is Lyme Awareness month- we challenge you to help spread life-saving facts!
Learn more at www.lymediseasechallenge
I’m headed to my son’s college graduation at Clemson in South Carolina. His birthday falls on Mother’s Day, just as it did when he was born 22 years ago.
What a great reason to miss Mother’s Day brunch back then. What a treat to be looking forward to sharing it now.
Even though I’m still struggling with the disabling illness that felled me when he was in high school, I’m better. And so grateful to be able to enjoy this big triple-header.
But it’s bittersweet.
Here’s the bitter: Everything I have missed in the lives of both my kids. No making wonderful mom/kid memories that would have stayed with us for a lifetime.
Here’s the news release from National Capital Lyme Association:
FOR IMMEDIATE RELEASE
Contact: Monte L. Skall
Virginia Senate Passes Landmark Lyme Disease Bill
NatCapLyme Urges the House of Delegates to Follow Suit
(McLean, VA) – February 11, 2016 – The National Capital Lyme Disease Association (NatCapLyme) today announced that the Virginia Senate passed landmark legislation relating to a patient’s right to treatment under guidelines listed in the National Guidelines Clearinghouse (the “NGC”).
Lyme can be tremendously debilitating, leading to loss of livelihood and even normal daily functioning. Lyme patients are desperate for treatment options. Increasingly, however, Virginia doctors are refusing new patients who present with the symptoms of Lyme or other tick-borne diseases. Where it appears that a patient may require extended antibiotic treatment beyond the standard 28 days, many Virginia doctors believe that reporting and treating these cases can lead to sanctions from the Virginia Board of Medicine. Continue reading
Virginia State Flag
Tomorrow, the state Senate in Virginia will vote on the language below proposed in a new bill:
1. That the Code of Virginia is amended by adding a section numbered 54.1-2963.3 as follows:
§54.1-2963.3. Treatment of Lyme disease.
No health care provider who provides treatment for Lyme disease or other tick-borne disease in accordance with a clinical practice guideline maintained by the National Guideline Clearinghouse after obtaining informed consent, which shall include an explanation of the risks and benefits of such treatment, from the patient to whom treatment is provided shall be the subject of any disciplinary proceeding by the Board of Medicine for following such clinical practice guideline, absent gross negligence or willful misconduct.
First of all, let me say how shameful it is that we even need to ask for such a law. Really? When we are in the midst of a growing global health crisis? Continue reading
This insightful post by El Gibbs about disabled women dismissed has elicited some great comments, I’m glad to see.