Category Archives: Uncategorized

Video: Shocking Portrayal of Youth Lost to Lyme

 

 

When I discovered this on YouTube, I sobbed as a happy young boy’s health disintegrated before my eyes because of Lyme and co-infections—and no appropriate treatment.  I weep when I see it today.

Shame on the Canadian health system.

How many more victims of the Lyme controversy could make a video like this?

Jean-Luc, I can’t find you, but I pray you have found the right help as I have, and remission.

I think of you often. You are my hero. Your courage has sustained me many a day.

Take a bite out of Lyme! 

May is Lyme Awareness month- we challenge you to help spread life-saving facts!
Learn more at www.lymediseasechallenge

Mother’s Day: The Bitter and the Sweet

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LifeLoveLyme

I’m headed to my son’s college graduation at Clemson in South Carolina. His birthday falls on Mother’s Day, just as it did when he was born 22 years ago.

What a great reason to miss Mother’s Day brunch back then. What a treat to be looking forward to sharing it now.

Even though I’m still struggling with the disabling illness that felled me when he was in high school, I’m better. And so grateful to be able to enjoy this big triple-header.

But it’s bittersweet.

Here’s the bitter: Everything I have missed in the lives of both my kids. No making wonderful mom/kid memories that would have stayed with us for a lifetime.

Continue reading

One Step Closer to Protection for Physicians in VA

 

 

Here’s the news release from National Capital Lyme Association:

FOR IMMEDIATE RELEASE

Contact: Monte L. Skall
Telephone: 703-821-8833
Email: NatCapLyme@natcaplyme.org
Website: http://www.natcaplyme.org

Virginia Senate Passes Landmark Lyme Disease Bill

NatCapLyme Urges the House of Delegates to Follow Suit

(McLean, VA) – February 11, 2016 – The National Capital Lyme Disease Association (NatCapLyme) today announced that the Virginia Senate passed landmark legislation relating to a patient’s right to treatment under guidelines listed in the National Guidelines Clearinghouse (the “NGC”).

Lyme can be tremendously debilitating, leading to loss of livelihood and even normal daily functioning. Lyme patients are desperate for treatment options. Increasingly, however, Virginia doctors are refusing new patients who present with the symptoms of Lyme or other tick-borne diseases. Where it appears that a patient may require extended antibiotic treatment beyond the standard 28 days, many Virginia doctors believe that reporting and treating these cases can lead to sanctions from the Virginia Board of Medicine.  Continue reading

Protection for Docs Treating Lyme

Virginia State Flag

Virginia State Flag

 

Tomorrow, the state Senate in Virginia will vote on the language below proposed in a new bill:

1. That the Code of Virginia is amended by adding a section numbered 54.1-2963.3 as follows:

§54.1-2963.3. Treatment of Lyme disease.

No health care provider who provides treatment for Lyme disease or other tick-borne disease in accordance with a clinical practice guideline maintained by the National Guideline Clearinghouse after obtaining informed consent, which shall include an explanation of the risks and benefits of such treatment, from the patient to whom treatment is provided shall be the subject of any disciplinary proceeding by the Board of Medicine for following such clinical practice guideline, absent gross negligence or willful misconduct.

 

First of all, let me say how shameful it is that we even need to ask for such a law. Really? When we are in the midst of a growing global health crisis?  Continue reading

Re-blogged: Lyme Patient Wins Powerball – Has No Idea

Had to repost this, it made me laugh! Only a Lyme patient will “get” this humor, for sure. I wanna be one her of her 4,000 closest pals—not for Powerball money, but for the gift of laughter!

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On Monday, January 11, 2016 a Lyme patient by the name of Amy made the difficult decision to spend her $36.00 on Powerball tickets. She needed more Vitamin C supplements but felt taking the risk to win big was worth the immune system crash.

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After announcing on Facebook that she plans to open a Lyme retreat free of charge to all of her Lyme friends, paying for their medical needs and lodging expenses, Amy put on her driving helmet, took her life in her hands and drove to the gas station to purchase her tickets. Upon returning home, Amy put those tickets someplace safe for fear a family member might steal them, even though she lives alone.

Watching the news early Thursday morning, around 11:45 am to be precise, Amy suddenly remembered she had purchased lotto tickets and she actually resides in Florida. Florida! One of the winning states!!

Four…

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Guest Post: All about able women

This insightful post by El Gibbs about disabled women dismissed has elicited some great comments, I’m glad to see.

bluntshovels

There is something special about being ignored. About being looked past, or over. A pang, that almost tastes like shame, for apologetically asking for a crumb. A seat at the table.

On March 8, there is an event on in Sydney. It’s being widely publicised on radio and tickets are nearly sold out. All About Women sells itself as a space to discuss a range of topics among some impressive women. Lots of people I know are going. I’m not.

In January, I asked the organisers about the accessibility of the venue and the event, if there were any panels discussing disability or if any of the presenters were women with a disability. In response, I was told that the curators would email me, and that they hadn’t asked any of the panellists to disclose whether they had a disability or not.

Hmm, I wonder what this means? Is it…

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