Category Archives: Uncategorized

TickTracker App

What a great idea. Identify and record the location of ticks you find, see what kinds have been found around you, and learn how to safely remove them. Check it out, and learn more at the foundation she started, by clicking here: LivLyme

Motoring Around

After six better months, back in the scooter and grateful for it. Standing in line is the hardest, so I’m quite happy to be sitting down chilling out!

It’s been four years!

Wow. My last post was 2018. So much has happened since then. And now I’m living in southern Maryland, with a view of the Chesapeake Bay. I can even see it when lying in bed (above), which is awesome since I still spend a lot of time in bed.

I think I might be well now except for a lot of stresses that set me back, and two tick-bites that may have set me back though we treated right away, my doctors did I mean.

I’m wondering about using my limited energy to blog again. Is anyone out there? Can I be helpful?

Something I’ll consider seriously in the coming days. Because we always have to prioritize, those of us with chronic illness. I do need more things to do lying down, though, so in addition to a book idea I have, perhaps I’ll return to this space regularly.

If you are reading this – I hope you are doing well on this day. I focus on one day at a time now, and I’ve gotten pretty good at not worrying about the future so much. Try it and see for yourself if you can find some peace that way.

Video: Shockingly Candid Story of Lyme Disease

When I discovered this on YouTube years ago, I sobbed as a happy young boy’s health disintegrated before my eyes because of Lyme and co-infections—and no appropriate treatment.  I weep when I watch it today.

And I wonder if he ever recovered, because he’s extremely ill at the end of this video. The website for donations is gone. Did he make it?

So many thousands could tell similar stories of horrible illness, treatment hard-won, and improvements followed by crashing in an endless cycle.

Jean-Luc, I think of you often. You are my hero. Your courage has sustained me many a day.

I haven’t found the rest of your story online, but I hope the treatment you finally got has brought you to remission, and that you are out there fishing every day.

Take a bite out of Lyme! 

May is Lyme Awareness month- we challenge you to help spread life-saving facts!
Learn more at www.lymediseasechallenge

Mother’s Day: The Bitter and the Sweet

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LifeLoveLyme

I’m headed to my son’s college graduation at Clemson in South Carolina. His birthday falls on Mother’s Day, just as it did when he was born 22 years ago.

What a great reason to miss Mother’s Day brunch back then. What a treat to be looking forward to sharing it now.

Even though I’m still struggling with the disabling illness that felled me when he was in high school, I’m better. And so grateful to be able to enjoy this big triple-header.

But it’s bittersweet.

Here’s the bitter: Everything I have missed in the lives of both my kids. No making wonderful mom/kid memories that would have stayed with us for a lifetime.

Continue reading

One Step Closer to Protection for Physicians in VA

 

 

Here’s the news release from National Capital Lyme Association:

FOR IMMEDIATE RELEASE

Contact: Monte L. Skall
Telephone: 703-821-8833
Email: NatCapLyme@natcaplyme.org
Website: http://www.natcaplyme.org

Virginia Senate Passes Landmark Lyme Disease Bill

NatCapLyme Urges the House of Delegates to Follow Suit

(McLean, VA) – February 11, 2016 – The National Capital Lyme Disease Association (NatCapLyme) today announced that the Virginia Senate passed landmark legislation relating to a patient’s right to treatment under guidelines listed in the National Guidelines Clearinghouse (the “NGC”).

Lyme can be tremendously debilitating, leading to loss of livelihood and even normal daily functioning. Lyme patients are desperate for treatment options. Increasingly, however, Virginia doctors are refusing new patients who present with the symptoms of Lyme or other tick-borne diseases. Where it appears that a patient may require extended antibiotic treatment beyond the standard 28 days, many Virginia doctors believe that reporting and treating these cases can lead to sanctions from the Virginia Board of Medicine.  Continue reading

Protection for Docs Treating Lyme

Virginia State Flag

Virginia State Flag

 

Tomorrow, the state Senate in Virginia will vote on the language below proposed in a new bill:

1. That the Code of Virginia is amended by adding a section numbered 54.1-2963.3 as follows:

§54.1-2963.3. Treatment of Lyme disease.

No health care provider who provides treatment for Lyme disease or other tick-borne disease in accordance with a clinical practice guideline maintained by the National Guideline Clearinghouse after obtaining informed consent, which shall include an explanation of the risks and benefits of such treatment, from the patient to whom treatment is provided shall be the subject of any disciplinary proceeding by the Board of Medicine for following such clinical practice guideline, absent gross negligence or willful misconduct.

 

First of all, let me say how shameful it is that we even need to ask for such a law. Really? When we are in the midst of a growing global health crisis?  Continue reading

Re-blogged: Lyme Patient Wins Powerball – Has No Idea

Had to repost this, it made me laugh! Only a Lyme patient will “get” this humor, for sure. I wanna be one her of her 4,000 closest pals—not for Powerball money, but for the gift of laughter!

ihaslymesdotcom

On Monday, January 11, 2016 a Lyme patient by the name of Amy made the difficult decision to spend her $36.00 on Powerball tickets. She needed more Vitamin C supplements but felt taking the risk to win big was worth the immune system crash.

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After announcing on Facebook that she plans to open a Lyme retreat free of charge to all of her Lyme friends, paying for their medical needs and lodging expenses, Amy put on her driving helmet, took her life in her hands and drove to the gas station to purchase her tickets. Upon returning home, Amy put those tickets someplace safe for fear a family member might steal them, even though she lives alone.

Watching the news early Thursday morning, around 11:45 am to be precise, Amy suddenly remembered she had purchased lotto tickets and she actually resides in Florida. Florida! One of the winning states!!

Four…

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Guest Post: All about able women

This insightful post by El Gibbs about disabled women dismissed has elicited some great comments, I’m glad to see.