5 Medical Appointments to Add to Your Lyme List

Medical centre

Credit: ashroc’s flickr stream

Coping with persistent Lyme—or any serious illness that goes on for a long time—often becomes a part-time or even full-time job.

With so many medical appointments and medications to keep track of, not to mention feeling rotten, you might be letting some important things slide.

Here’s a reminder of items to put on your calendar:

    1. Dental check-up and cleaning. See your dentist once a year; neglecting your teeth could cost you in the long run. Your dentist not only catches problems with your teeth before they reach a crisis stage, but checks for mouth cancer as well. Untreated gum disease can lead to the loss of your teeth; studies suggest it may cause strokes or heart attacks. 
    2. Colonoscopy. The schedule varies depending on your age, race, and family history. Colon cancer may not cause symptoms until it is pretty advanced. Don’t take chances.
    3. Annual skin check—or an immediate appointment if you see something suspicious. Skin cancer rates are higher than those for any other form of cancer. A dermatologist can readily recognize both dangerous skin cancers and potential troublemakers, hopefully catching them before they spread. This infographic from the American Cancer Society tells the story.
    4. Gynecological/Prostate exam. Okay, so no woman or man looks forward to these appointments. But getting checked out sure beats the life-threatening alternative.
    5. Eye exam. See your doctor at least every two years for things like macular degeneration and glaucoma (yearly if over 60) and be sure to alert the doc to your lyme infection, which may impact your eyes.

And don’t forget your annual physical. Your Lyme literate doctor is covering a lot of bases, and may well catch something amiss that’s not related to tick-borne infections.

Nonetheless, it’s important to maintain appointments with your primary care physician, who goes through an exam with a fresh eye and check basics like cholesterol. Put your general practitioner and Lyme doctor in touch to ensure that your care is complete.

Buttercups

Buttercups.  Credit: LifeLoveLyme

Buttercups.
Credit: LifeLoveLyme

One of the many reasons I love getting away to the house I visit in a small community in Maryland on the Chesapeake Bay: Buttercups.

Back in my suburban neighborhood, herbicides have wiped out “weeds” in every perfectly manicured yard. But a few weeks ago at my get-away, I saw the cheery flowers in the photo above growing in the yard across the street with wild abandon. No weed killer there.

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10 Quotes on Life and Love for Those Tough Lyme Days

: Plenty of life and love. Photo: LifeLoveLyme

Granddaughter, grandmother: generations of life and love.
Photo: LifeLoveLyme

On days like today when I’m feeling too sick to write—well, that’s when I most need encouragement from the words of others. Here are some quotes that really speak to me; be sure to click on the links to read a little about these inspiring women and men.

1. Where there is love, there is life. Mahatma Gandhi

2. Only when we are no longer afraid do we begin to live. Dorothy Thomson

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Video: Rachel’s Story: What It’s Like to be a Teen with Lyme

I like so many things about Rachel’s YouTube video, I hardly know where to start. She’s so earnest, so honest, so insightful.

The details she gives of life with lyme at 14 along with her perspective at age 20 reveals so much. Her juxtaposition of “then” and “now” is simply brilliant.

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Checking Facebook, Craving Face Time

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Two things in particular sustain me: natural beauty and friends.
Photo: LifeLoveLyme

For a long time now, I’ve been in a place where viewing the lives of friends through the window of Facebook is incredibly painful. What’s wrong with me? Why can’t I just enjoy the happy happenings of others instead of being overcome by my own piercing grief, frustration, and regret?

I checked my page today and saw a lot of posts from folks, many of whom I have not seen since I got sick. They’re experiencing all kinds of major life events. Meanwhile I’m facing major limitations.

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Garden of Evil?

Photo: LifeLoveLyme

Photo: LifeLoveLyme

After months of being severely limited by Lyme – worn out by an hour or two of daily activities and resigned to holding court on my red sofa for most of my waking hours – I am enjoying a period of respite from herxing between treatments as I build up my immune system for the next big round of IV antibiotics. Mind you, at the moment I still only have maybe a quarter of a tank of gas per day to run on, but that’s enough to get me a fraction beyond just the basics. It’s enough to allow me to drive myself to the weekend house all by myself on better days when I’ve planned well, which means an incredible sense of freedom. The first day, I settled in to read a stack of library books and a bagful of New Yorkers and simply…rest.  But yesterday I was seized by the exuberance of the season and went to the hardware store to pick up a small shovel and hot pink petunias. Continue reading

Burning Feet

I’m pretty sure most people around the world who aren’t living with Lyme think the symptom list is this simple and straightforward:

  • bull’s-eye rash
  • flu-like symptoms

And I reckon that this false belief is a major reason persistent Lyme disease continues to be missed in people with a wide range of complaints physical, cognitive, and emotional.

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Juicing Up My Diet

Can you eat all this lush veggie wonderfulness in one sitting? Photo by LifeLoveLyme

Can you eat all this lush veggie wonderfulness in one sitting?
Photo by LifeLoveLyme

Carrots, celery, brocoli, a hearty portion of kale, parsley, an apple and a big red beet: so much nutrition! A couple of day’s worth of vibrant vitamins, right?

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Do Ticks Survive Winter? Researchers Weigh In

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I know, ugly photo. But it shows the flowerbed in my backyard where I got a tick embedded in my hip one summer. And a bull’s-eye rash soon after. And pretty soon was very, very ill.

As you can see, my garden is in a sad state these days. Last summer and fall I was too sick to clean it up—and besides, I was very afraid of the danger lurking there.

I said to myself, I’ll feel better in the winter. I’ll get rid of the dead things when the ticks are gone.

Flash forward to the middle of winter. Someone in my support group reported that she’d just come inside her house and done a complete tick check—in January. In Virginia.

And found a live deer tick. We were shocked.

I’d assumed that once temperatures dipped below freezing, ticks were done for ‘til spring. Now I know otherwise.

Here’s what I found out.

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Babesiosis: Multiple Strains Complicate Diagnosis

When I finally arrived at the door of a Lyme Literate Doctor (LLMD), I was surprised to learn that in addition to Lyme, I have an infection of the red blood cells called Babesiosis, caused by a tiny parasite.

Symptoms can include fatigue, drenching sweats, muscle aches,  and nausea; the infection often begins with a high fever. It can also attack the spleen.  I got mine from a tick bite. People also become infected through blood transfusions. 

The thing is, if you are treated for Lyme but you also have this co-infection going undetected and untreated, your health won’t improve, as seen in a recent television program about a young girl in Maryland who wasn’t improving when treated for Lyme alone. 

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