Category Archives: Lyme Basics

10 Things I Wish I’d Known About Lyme Disease

IV treatment. Pills. More pills. I can't believe I made it through all that. When it could have been avoided...

That’s the little portable pump for my IV drugs. Then there were the pills. More pills. Harsh meds that made me sicker so I could get better. I can’t believe I made it through all that. When it could have been avoided…

 

 

It’s 2016, and I’m finally climbing out of the Lyme hell I fell into blindly four-and-a-half years ago. If only I’d known more, sooner.

Maybe I can help someone, somewhere, by offering a few things I was shocked to learn. Frankly, it is damned hard to pick just 10 things. But here goes:  Continue reading

Cutting-edge Test Sets a Trap for Lyme

Click here to download and play a cool Powerpoint animation of the nano trap at work: Nanotrap animation. Courtesy Dr. Lance Liotta, George Mason University.

Don’t be put off by the science lingo—click on the image to download and play a Powerpoint of the nanotrap at work. Cool, right?
Courtesy of Dr. Lance Liotta, George Mason University.

 

Several years ago after gardening in my suburban backyard, I found a deer tick attached to my hip. Then came a rash. And then I started hurting all over like I was getting the flu.

I wasn’t surprised when my nurse practitioner examined me, diagnosed Lyme, and prescribed antibiotics. I should have been lucky. I had the bite with the beast still attached, in the middle of the classic target rash. I felt like I was dying of flu-like aches and pains.

But as it turned out, I wasn’t lucky after all.  Continue reading

O Canada

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I’m always a little stunned when I track this blog and am reminded that people from all over the world visit. So many of us are on the lookout for information.

Today I’m thinking about Canadians because lots of my traffic at the moment is coming from my neighbors to the north, who’ve been checking out my post from several years ago on how Lyme was affecting my brain at the time.  Looks like some of you are sharing the link on Facebook. Thank you!

Like others around the globe, many Canadians are having a tough time getting good treatment. Health officials just don’t get it (sound familiar?).

The nonprofit Canadian Lyme Disease Foundation says:  Continue reading

“Ostriches” in Australia – and the US – and Your Country?

Credit: Zappy's flickr stream

Credit: Zappy’s flickr stream

I just saw a Facebook posting by the Lyme Disease Association of Australia that got my Lyme-infected blood boiling:

“Antibiotic treatment for Lyme can often be hard to access in Australia due to our government and health officials opposition and as a result, this can leave patients having to source alternative treatment options…”

At the very least, everyone deserves the chance to see a compassionate, respectful doctor for help with Lyme and other infections from ticks. A doctor who listens and understands and offers medical help — not one who says, “Lyme doesn’t exist here, you don’t have it.” A doctor who offers science-based treatment options.  Continue reading

Shocking Infographic: Lyme Disease Quick Facts

From Lyme doctor Daniel Cameron & Associates:

 

Video: “Facts to Save Your Life” by Gabbi Hicks

Look at this young woman. She looks pretty fine, doesn’t she?

Now listen to her words. Really listen. (Well, it’s kinda hard not to, she’s so compelling).  Continue reading

Yo, Journalists!

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“All the news that’s fit to print”? Then why isn’t there constant press coverage in the NYT and every other news outlet about Lyme and other horrific diseases carried by ticks? Where’s the reporting about the lack of proper diagnosis and treatment and the latest research results?

We’ve asked this question thousands of times. We have plenty of topics: Raising awareness. Emerging science. Suffering patients. Impacts on families, businesses, the economy.

Just recently I heard yet another story that should be told, about a group of boys in my area who found a way to connect with each other. These young kids have been housebound, some for years. Continue reading

Video: “What Makes Ticks Stick”

If you’re like me, you’ll appreciate this,  a close-up view of how a tick attaches to people. These images may just stick in your mind and spur you to check for ticks daily.

Do ticks live through winter? Research says yes! You can’t protect yourself 100%, but we need to do all we can to lower the odds of getting Lyme—or getting reinfected.

Video: Pathologist Alan MacDonald Addresses Important Lyme Questions

If you’re like me, you want to know the latest scoop on what scientists are learning about Lyme disease. In this May 2013 interview we hear again from pathologist Alan MacDonald. (This interview is part 2 of a 3-part series, see the first one here). I’ve noted some key points you can jump to if you don’t have time to view the entire interview.

Continue reading

When Lyme Disease Goes to the Heart

Carolyn and her dog x with the friends helping her get the xx treatment.

Carolyn with her pooch Betty and, from left to right, the friends who have banded together to help Carolyn get treatment: Mark Gordon, Jim Pettengill, Teresa Gordon, Bruce Hoppenworth, Marianne Antonelli, and Gary Antonelli. Not pictured: Maggie Gobie.
Photo: Randy Martinek

Lyme affects the heart in more ways than one. Just ask Carolyn Ross, who was loving the outdoor life on a Virginia horse farm back in 2007. Then ominous change came overnight.

She can tell you the day her health crashed: December 27. After a holiday party, flu-like symptoms came on, and a few days later she noticed a rash on her arm.

Continue reading